The 12 award classes acknowledge particular person advocates, coverage makers, researchers, organizations, and corporations who work to make a distinction for the worldwide uncommon illness group. The deadline for nominations is Sept. 10 and they are often submitted from anyplace on the planet.
The winners, chosen by Eurordis’ board of administrators in October, will obtain their awards in a web based ceremony on Feb. 8, 2022.
The annual Black Pearl Awards ceremony, now in its eleventh 12 months, is held at first of February to coincide with the month of Rare Disease Day. Eurordis is among the organizers of the worldwide marketing campaign to lift consciousness for Uncommon Illness Day, which is noticed yearly on the final day of February.
“The black pearl symbolises these distinctive people, organisations, and corporations who exhibit an unimaginable mixture of exhausting work and dedication of their day by day lives,” Eurordis says on its website.
The award classes embrace the Lifetime Achievement Award, the Younger Affected person Advocate Award, the European Uncommon Illness Management Award, and the Coverage Maker Award. The Scientific Award, the Eurordis Volunteer Awards, and the Eurordis Members Award additionally will every have a winner, as will the Media Award.
New for 2022 is the Social Media Award.
Different classes embrace the Firm Award for Innovation, the Firm Award for Affected person Engagement, and the Firm Award for Well being Know-how.
The Lifetime Achievement Award will honor a person who has demonstrated a lifelong dedication to uncommon illness advocacy. Candidates should have positively affected the uncommon illness group on a nationwide, European, or worldwide scale.
For the Younger Affected person Advocate Award and the Social Media Award, a number of finalists will likely be chosen and the winners will likely be chosen by a public vote. The Younger Affected person Advocate Award acknowledges a person age 30 or youthful who raises consciousness of points confronted by uncommon illness sufferers at an area, nationwide, or worldwide degree.
The Social Media Award, being launched for nominations this 12 months, will likely be introduced to a person or group who creates related social media content material advocating for individuals with uncommon ailments. This media award is devoted to the most effective advocates on social media platforms corresponding to Fb, Twitter, Instagram, YouTube, and TikTok.
The winner of the European Uncommon Illness Management Award will likely be acknowledged for participating in efficient uncommon illness advocacy in Europe. The Coverage Maker Award, in the meantime, acknowledges a person whose work to implement insurance policies has improved the lives of uncommon illness sufferers. All of the candidates nominated for these awards can have championed for larger consciousness of uncommon illness and advocated for insurance policies to enhance sufferers’ lives.
Eurordis is collaborating with Orphanet, a useful resource for uncommon illness info, to evaluate nominations for the Scientific Award. This award acknowledges a researcher whose work has led to scientific breakthroughs and who raises consciousness for uncommon illness communities.
As much as two people who’ve made a major contribution to the uncommon illness group on a voluntary foundation will obtain a Eurordis Volunteer Award. The Eurordis Members Award will honor a member group that gives modern affected person assist or advocacy. Of notice, Eurordis is an alliance of 962 non-profit organizations from 73 international locations that advocate for uncommon illness sufferers.
People or teams who create media items that increase consciousness of uncommon problems are eligible for the Media Award. It acknowledges distinctive artwork, writing, journalism, images, movie, and mass media.
Lastly, for the corporate awards, Eurordis is partnering with MedTech Europe to guage the nominations for well being know-how. This award honors an organization growing medical applied sciences — units, apps, IT platforms, or diagnostic instruments — that enhance the lives of uncommon illness sufferers.
The Firm Award for Innovation will likely be given to a enterprise utilizing new strategies to develop therapies for uncommon ailments. A pharmaceutical or biotech firm that reveals a long-term dedication to collaborating with uncommon illness sufferers — involving them within the medical trial design course of and in early phases of therapeutic growth — will likely be honored with the Firm Award for Affected person Engagement.
For extra info on the Black Pearl Awards nomination course of, please contact Eurordis occasions supervisor Martina Bergna at [email protected].